18 months ago... It’s late. All I know of time is my room is black except for the "sleep inducing" orange tint of my computer screen. The world has that quiet abandoned hum it gets deep in the night. It's now the only time I can even attempt to write. I’m typing, frantically, trying to… Continue reading Living in the Margins: Why I stopped Blogging for a Year
As I type this, the hospital band around my wrist is flapping against the keyboard, that's how fresh my latest hospital release is. For most people battling an illness, a trip to the E.R. is nothing that really needs to be "navigated" or "survived". If you have ME/CFS, or really any chronically misunderstood illness, ending… Continue reading How to Survive the Hospital when Chronically ill:
I was truly humbled by the response to my previous blog. I feel safe in saying we could build a castle out of the pill bottles donated from everyone's generosity. While the outpouring was heart warming, I'll admit it also paralyzed me a little to post again. I sincerely doubt all those so graciously now… Continue reading The best (free) medical app: track all your meds with no effort, no typing, no cost!
Pill bottles: they are those translucent orange soldiers that pile up all around us... in our drawers, bags, cabinets... sometimes I wonder - if I had saved every empty pill bottle since I got sick, what would that look like? One of the things I have always hated the most about being sick, is you… Continue reading Empty Pill Bottles Desperately Needed (Take your meds & help others!)
The first time I heard lack of sleep could kill you, be the actual cause of your death, I thought it had to be an urban legend; like the Jackalope or Big Foot. When I discovered this isn't a tall tale but a very pure reality, I wondered: How? How does prolonged sleep deprivation kill… Continue reading Poor Sleep Poisons the Brain (Study on Neurotoxin Buildup provides clues for ME/CFS)