Chronic Pain, Fibromyalgia, Help, Immune Deficiency, ME/CFS, My Life, Tips & Tricks

How to Survive the Hospital when Chronically ill:

As I type this, the hospital band around my wrist is flapping against the keyboard,  that's how fresh my latest hospital release is.  For most people battling an illness, a trip to the E.R. is nothing that really needs to be "navigated" or "survived".  If you have ME/CFS, or really any chronically misunderstood illness, ending… Continue reading How to Survive the Hospital when Chronically ill:

Help, Tips & Tricks, Treatment

The best (free) medical app: track all your meds with no effort, no typing, no cost!

I was truly humbled by the response to my previous blog.  I feel safe in saying we could build a castle out of the pill bottles donated from everyone's generosity. While the outpouring was heart warming, I'll admit it also paralyzed me a little to post again.  I sincerely doubt all those so graciously now… Continue reading The best (free) medical app: track all your meds with no effort, no typing, no cost!

Help, My Life, Tips & Tricks

Empty Pill Bottles Desperately Needed (Take your meds & help others!)

Pill bottles: they are those translucent orange soldiers that pile up all around us... in our drawers, bags, cabinets... sometimes I wonder - if I had saved every empty pill bottle since I got sick, what would that look like? One of the things I have always hated the most about being sick, is you… Continue reading Empty Pill Bottles Desperately Needed (Take your meds & help others!)

Brain, Brain Fog, Cognitive Issues, ME/CFS, Research, Sleep

Poor Sleep Poisons the Brain (Study on Neurotoxin Buildup provides clues for ME/CFS)

The first time I heard lack of sleep could kill you, be the actual cause of your death, I thought it had to be an urban legend; like the Jackalope or Big Foot.  When I discovered this isn't a tall tale but a very pure reality, I wondered:  How?  How does prolonged sleep deprivation kill… Continue reading Poor Sleep Poisons the Brain (Study on Neurotoxin Buildup provides clues for ME/CFS)

ME/CFS, Research, Uncategorized

New Study: ME/CFS more Disabling than 20 Top Conditions

Hayfever receives more medical funding than ME/CFS!  Hayfever... that sniffling, sneezing, stuffy head, "achoo" condition is thought to be more serious and receives more help and respect than myalgic encephalomyelitis (ME/CFS)!  When you consider what many people think of this illness, I guess it shouldn't be surprising.  I doubt any breast cancer patient has ever… Continue reading New Study: ME/CFS more Disabling than 20 Top Conditions