As I type this, the hospital band around my wrist is flapping against the keyboard, that's how fresh my latest hospital release is. For most people battling an illness, a trip to the E.R. is nothing that really needs to be "navigated" or "survived". If you have ME/CFS, or really any chronically misunderstood illness, ending… Continue reading How to Survive the Hospital when Chronically ill:
I was truly humbled by the response to my previous blog. I feel safe in saying we could build a castle out of the pill bottles donated from everyone's generosity. While the outpouring was heart warming, I'll admit it also paralyzed me a little to post again. I sincerely doubt all those so graciously now… Continue reading The best (free) medical app: track all your meds with no effort, no typing, no cost!
Pill bottles: they are those translucent orange soldiers that pile up all around us... in our drawers, bags, cabinets... sometimes I wonder - if I had saved every empty pill bottle since I got sick, what would that look like? One of the things I have always hated the most about being sick, is you… Continue reading Empty Pill Bottles Desperately Needed (Take your meds & help others!)
The first time I heard lack of sleep could kill you, be the actual cause of your death, I thought it had to be an urban legend; like the Jackalope or Big Foot. When I discovered this isn't a tall tale but a very pure reality, I wondered: How? How does prolonged sleep deprivation kill… Continue reading Poor Sleep Poisons the Brain (Study on Neurotoxin Buildup provides clues for ME/CFS)
Hayfever receives more medical funding than ME/CFS! Hayfever... that sniffling, sneezing, stuffy head, "achoo" condition is thought to be more serious and receives more help and respect than myalgic encephalomyelitis (ME/CFS)! When you consider what many people think of this illness, I guess it shouldn't be surprising. I doubt any breast cancer patient has ever… Continue reading New Study: ME/CFS more Disabling than 20 Top Conditions