Brain, Brain Fog, Cognitive Issues, ME/CFS, My Life

Living in the Margins: Why I stopped Blogging for a Year

18 months ago... It’s late.  All I know of time is my room is black except for the "sleep inducing" orange tint of my computer screen.  The world has that quiet abandoned hum it gets deep in the night.  It's now the only time I can even attempt to write.  I’m typing, frantically, trying to… Continue reading Living in the Margins: Why I stopped Blogging for a Year

Chronic Pain, Fibromyalgia, Help, Immune Deficiency, ME/CFS, My Life, Tips & Tricks

How to Survive the Hospital when Chronically ill:

As I type this, the hospital band around my wrist is flapping against the keyboard,  that's how fresh my latest hospital release is.  For most people battling an illness, a trip to the E.R. is nothing that really needs to be "navigated" or "survived".  If you have ME/CFS, or really any chronically misunderstood illness, ending… Continue reading How to Survive the Hospital when Chronically ill:

Help, My Life, Tips & Tricks

Empty Pill Bottles Desperately Needed (Take your meds & help others!)

Pill bottles: they are those translucent orange soldiers that pile up all around us... in our drawers, bags, cabinets... sometimes I wonder - if I had saved every empty pill bottle since I got sick, what would that look like? One of the things I have always hated the most about being sick, is you… Continue reading Empty Pill Bottles Desperately Needed (Take your meds & help others!)

My Life

Ginger Ail: This is My Something

Good grief, not another illness blog?! If that's your first thought, you aren't alone.  None of us are using up our birthday wishes thinking: “if only the world had another Chronic Illness blog”.   Yet, without a doubt, the best help I have ever received has always come from other patients.  It's the best information out… Continue reading Ginger Ail: This is My Something