18 months ago... It’s late. All I know of time is my room is black except for the "sleep inducing" orange tint of my computer screen. The world has that quiet abandoned hum it gets deep in the night. It's now the only time I can even attempt to write. I’m typing, frantically, trying to… Continue reading Living in the Margins: Why I stopped Blogging for a Year
As I type this, the hospital band around my wrist is flapping against the keyboard, that's how fresh my latest hospital release is. For most people battling an illness, a trip to the E.R. is nothing that really needs to be "navigated" or "survived". If you have ME/CFS, or really any chronically misunderstood illness, ending… Continue reading How to Survive the Hospital when Chronically ill:
The first time I heard lack of sleep could kill you, be the actual cause of your death, I thought it had to be an urban legend; like the Jackalope or Big Foot. When I discovered this isn't a tall tale but a very pure reality, I wondered: How? How does prolonged sleep deprivation kill… Continue reading Poor Sleep Poisons the Brain (Study on Neurotoxin Buildup provides clues for ME/CFS)
Hayfever receives more medical funding than ME/CFS! Hayfever... that sniffling, sneezing, stuffy head, "achoo" condition is thought to be more serious and receives more help and respect than myalgic encephalomyelitis (ME/CFS)! When you consider what many people think of this illness, I guess it shouldn't be surprising. I doubt any breast cancer patient has ever… Continue reading New Study: ME/CFS more Disabling than 20 Top Conditions
Ginger Ail 